Narcolepsy Resources
These free educational resources are provided to help you learn more about narcolepsy and its symptoms, and to help you discuss your symptoms with a sleep specialist. These materials are intended for US residents 18 years of age or older and are not intended to replace a conversation with a sleep specialist. A sleep specialist can evaluate your symptoms and make a diagnosis.
Free patient tools and education materials
Narcolepsy Information Kits
There are 2 versions of the Narcolepsy Information Kit—1 for adults and 1 for caregivers of children. Please select the kit you need.
Narcolepsy Information Kit for Adults
(1) Understanding Narcolepsy — Patient
Counseling Guide
(1) Epworth Sleepiness Scale
Narcolepsy Information Kit for Caregivers
(1) Understanding Pediatric Narcolepsy — Caregiver Counseling Guide
(1) Epworth Sleepiness Scale for Children and
Adolescents
Understanding Narcolepsy — Patient Counseling Guide
This brochure is provided as a resource to help you understand and describe your symptoms, and to help you discuss your symptoms with a sleep specialist.
download/print
Epworth Sleepiness Scale
This short questionnaire assesses the severity of daytime sleepiness by rating how likely you are to fall asleep in 8 common situations.
download/print
Understanding Pediatric Narcolepsy — Caregiver Counseling Guide
This brochure is provided as a resource to help you understand and describe your child’s symptoms, and to help you discuss those symptoms with a sleep specialist.
download/print
Epworth Sleepiness Scale for Children and Adolescents
This short questionnaire assesses the severity of daytime sleepiness by rating how likely your child is to fall asleep in 8 common situations.
download/print
Narcolepsy Fact Sheet
This easy-to-read 1-page guide contains some important facts about narcolepsy.
download/printNarcolepsy Website Links
The third-party resources cited below are for the reader's information only. Jazz Pharmaceuticals does not endorse and is not responsible for the content included in these resources.
- sleepeducation.org
- American Academy of Sleep Medicine
- 2510 North Frontage Road
- Darien, IL 60561
- Phone: (630) 737-9700
- Fax: (630) 737-9790
- www.narcolepsynetwork.org
- Narcolepsy Network
- PO Box 2178
- Lynnwood, WA 98036
- Phone: (401) 667-2523 or
Toll-free: (888) 292-6522 - Fax: (401) 633-6567
- Email: narnet@narcolepsynetwork.org
- www.sleepfoundation.org and sleep.org
- National Sleep Foundation
- 1010 North Glebe Road, Suite 310
- Arlington, VA 22201
- Phone: (703) 243-1697
- Email: nsf@sleepfoundation.org
- www.rarediseases.org
- NORD (National Organization for Rare Disorders)
- 55 Kenosia Avenue
- PO Box 1968
- Danbury, CT 06813-1968
- Phone: (800) 999-6673
- www.wakeupnarcolepsy.org
- Wake Up Narcolepsy Inc.
- PO Box 60293
- Worcester, MA 01606
- Phone: (978) 751-DOZE (3693)
- Email: info@wakeupnarcolepsy.org
